Archive for “Idiopathic Intracranial Hypertension (IIH)”

On this page the following entries were made in the “Idiopathic Intracranial Hypertension (IIH)” category.


End of year catch-up

Posted December 29th, 2008 by Rachel

Well, I’ve just realised I’ve managed to go almost the whole of December without posting anything, so, apart from a big “Merry Christmas!” to one and all, a quick catch-up on what’s been going on around here recently…what can I say expect the past few weeks have been crazy since I went back to work [...]

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Two more to add to the collection

Posted November 7th, 2008 by Rachel

Yep, two more to add to the collection…sick notes, that is. I realised this morning that I’d forgotten to send my initial sick note from the hospital into work…duh! And now I have another one to add to the collection as well – another two weeks from next Monday. Just finished photocopying them before I [...]

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Swiss cheese brain update 2/11/08

Posted November 2nd, 2008 by Rachel

Not a bad day again yesterday. A bit of a headache, but mainly headache free. This morning though I woke up with the typical IIH morning headache, which panicked me a bit, though that may have been because I slept in late (10.30! It’s almost unheard of for me to sleep that late unless I’m [...]

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Swiss cheese brain update 31/10/08

Posted October 31st, 2008 by Rachel

Well, the results I’ve been getting this week from my little INR machine have been somewhat different from the lab results that have been coming back from the district nurse checking my INR using a venous sample, as opposed to the capillary sample the machine uses. The result I got on Tuesday was 1.4 and [...]

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Swiss cheese brain update 30/10/08

Posted October 30th, 2008 by Rachel

Well the district nurse came early this morning (before 10am) to take a blood sample to check my INR, so the sample should go off in the first collection to the hospital at lunch time, and I should get the result back this afternoon all being well. I tried to do a test myself just [...]

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Swiss cheese brain update 29/10/08

Posted October 29th, 2008 by Rachel

Well today I managed to sleep in until 10am! That’s almost unheard of, even when I’m in my usual state of health. Initially I did wake up at around 6.30am, largely I suspect because I forgot to take my strong painkillers last night, and just took my usual bedtime ones. I didn’t think I’d get [...]

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Swiss cheese brain update 28/10/08

Posted October 28th, 2008 by Rachel

Well, all in all I’m not feeling too bad. In fact, considering everything I’d even go so far as to say that for this stage in the game, I’m feeling pretty damned good. I spent most of Sunday after I got home dozing on and off, and a fair amount of yesterday either dozing or [...]

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My swiss cheese brain

Posted October 27th, 2008 by Rachel

*** WARNING *** CONTAINS PHOTOS OF MY MOST RECENT “WAR WOUNDS” *** Well, after much drama and waiting for news, I finally made it into hospital and on Friday had the revision of my VP shunt. It turned out that the existing ventricular catheter (which is blocked and no longer works) was rather firmly attached [...]

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News of my departure was a little premature

Posted October 23rd, 2008 by Rachel

Well, I should be in the hospital by now getting drained of blood and having allsorts of tests and stuff (I was supposed to be there for 10am this morning), but I’m still here. Phoned this morning at 8.30 to check they’d got a bed for me, as per the usual instructions, and was told [...]

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Signing out

Posted October 22nd, 2008 by Rachel

Well, on Monday came the good news that the plan’s still for me to go in on Thursday – no nasty heparin infusion! Yay for me! Stopped the warfarin from Monday, so hopefully my INR should be just about where they want it by now. I’ve packed my Coaguchek machine, as instructed. Hopefully the combination [...]

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